… 92 percent of survey participants did not want genetic information shared with employers; and 80 percent of respondents felt health insurers should not have access to their genetic informationThe next decade saw repeated, but unsuccessful, attempts to pass legislation protecting people from misuse of genetic data. Congress's inability to pass the bill stemmed in part from business's concerns about the burden of complying with a new law.
GINA’s protection against discrimination … focuses on genetic information, not the manifestations of genetic disease.However, GINA does not prevent healthcare providers from recommending genetic tests. It does not require coverage for specific genetic tests or treatments. And GINA does not prevent insurers from considering health status in setting premiums – although, starting January 1, 2014, the Affordable Care Act will prohibit higher premiums based on health status (i.e., pre-existing conditions). In short, GINA's protection against discrimination by employers or health insurance companies focuses on genetic information, not the manifestations of genetic disease.